The European Days of Albinism is a unique international event focusing, from various perspectives, on a rare genetic condition: albinism. It is:

  • An international scientific conference open to researchers, medical practitioners and students with various sessions featuring worldwide experts on albinism
  • A meeting of Albinism Europe, the network of European organizations of persons with albinism.
  • A meeting of young people with albinism coming from all over Europe (4th YPA)

Official 5thEDA arrival day: Wednesday April 1st, 2020.

Official 5thEDA departure day: Saturday afternoon April 4th, 2020

Optional departure day: Sunday April 5th, 2020 (Extra-night option)

For more information about transportation on arrival and departure, please, visit the page Venue.

Program of the scientific conference

The program of the EDA scientific meeting is traditionally put together by the scientific committee based on the submitted abstracts. All sessions are chaired by the scientific committee members

The scientific program of the 5th EDA is now available!

Download the latest version of the program in PDF now!

If you wish to submit an abstract for an oral presentation, please, go to the Registration page.

If you are not a scientist, but you are interested in attending the 5thEDA scientific conference, please, contact us via the Contact page. We will be very happy to exchange with you and study the feasaibility of your participation.

Program of Albinism Europe work meeting

The Albinism Europe work meeting is a closed meeting for representatives of European Albinism associations only.

The program of this meeting is not yet available.

If you are a leader of a European Albinism group (officially registered or not) not yet represented within Albinism Europe, and if you wish to participate in the 5thEDA, please contact us via the Contact page. We will be very happy to exchange with you and identify the best way for you to join our initiative.

Program of the 4th YPA

The YPA is a gathering of young adults with albinism coming from the different European Albinism organizations.

The program of this event is still under construction. Here is a preliminary list of activities:

  • Introduction to Albinism Europe and the European associations of albinism,
  • Outdoor activities,
  • Visit of Bordeaux,
  • Sharing of experience,
  • Exchange with the scientific conference participants,
  • Social time, and much more!

The YPA participants are selected by the Albinism Europe associations. If you are a member of one of those national associations and if you are interested in attending the YPA meeting, please, contact directly your association board. No application will be accepted from any person who is not a member of one of the 10 Albinism Europe associations.