The European Days of Albinism is a unique international event focusing, from various perspectives, on a rare genetic condition: albinism. It is:

  • An international scientific conference open to researchers, medical practitioners and students with various sessions featuring worldwide experts on albinism
  • A meeting of Albinism Europe, the network of European organizations of persons with albinism.
  • A meeting of young people with albinism coming from all over Europe (YPA meeting)

The 5thEDA was initially planned to be held in Bordeaux, France, April 1st-4th, 2020.
However, due to the COVID-19 pandemic, the 5thEDA will finally be held online November 4th – 7th, 2020.
The meeting of young adults with albinism as well as the meeting of Albinism Europe member association leaders are postponed to a later date, yet to be determined.

Program at a glance

Click here to see the full 5EDA Program at a glance.

The program is made up of four Main Scientific Sessions and several side sessions dedicated to specific categories of participants.

IMPORTANT! Be aware of the different time zones! Times are indicated in Central European Time (UTC+1) in all 5EDA general and detailed programs. 

The 5th EDA is an online conference gathering participants from all over the world. When going through the program, make sure that you are making the appropriate adjustments according to the timezone where you will be located at the time of the conference.

Main Sessions and Flash presentations

The program of the EDA scientific sessions is traditionally put together by the Scientific Committee based on the submitted abstracts. All sessions are chaired by members of the scientific committee.

Click here to download the latest version of the:

Detailed Program of the Main Sessions and Flash Presentations

The 5th EDA will include four main sessions covering the following topics:

  • Genetics
  • Ophthalmology
  • Dermatology
  • Hermansky-Pudlak Syndrome
  • Cellular mechanisms of oculocutaneous albinism
  • Cellular and animal models
  • Therapies

Due to the high number and quality of the submitted abstracts, an additional session of flash presentation has been included in the program. Have a look at the list of selected speakers.

Please note that abstract submission is now closed.

Participants of all categories are welcome to attend the Main Sessions. However, if you are not a scientist, please note that these sessions are made up of complex scientific presentations that might not be appropriate for a lay person. In addition, please note that all conference sessions will be offered in English only. Nonetheless, a special scientific session for non-scientists has been included in the the program. For more information on this latter, see below « Latest Albinism Research ».


« The basics of Albinism for the non-expert healthcare provider » side session

This special session has been added to the EDA program for the first time of the conference series. It is shaped as a short course for healthcare providers of all areas that are not yet experts of albinism. It will aim to provide participants with general information and most up-to-date best practices to best diagnose and manage patients with albinism.

Click here to download the latest version of the:

Program of « The Basics of Albinism for the non-expert healthcare provider » side session


« Latest Albinism Research » side session

(for non-scientists only)

Throughout this special side session, international albinism experts selected from among the speakers of the main sessions will give popularized presentations on the latest albinism research.

The different presentations will be pre-recorded and accessible for registered participants from the first to the last day of the conference.

Click here to download the latest version of the:

Program of the « Latest Albinism Research » side session

A special Q&A session will be held live on the third day of the conference. Albinism experts will provide answers to a selection of questions submitted by the participants.

Please note that this session will be in English only.


Virtual cocktail and exhibition hall

Join this unique and innovative session to exchange freely with other participants in a relaxed and informal way!

Come visit the virtual exhibition hall to find out more on the activities of different albinism support groups and NGOs working on albinism.

Wander throughout the virtual venue and have a chat with other participants.

Don’t miss this opportunity to:

  • exchange contact information with other participants,
  • discuss potential collaborations with other research groups,
  • ask for additional information on the presentations you have most enjoyed.


Meeting of Albinism Europe association leaders and Scientific Committee members

This is a closed work meeting. All concerned persons will receive additional information on how to attend by email.