The EDA conference was created in 2012 by Genespoir, the French association for people with albinism, supported by the following scientists:
3rd EDA
April 7-8, 2016 – Milan, Italy
Local organizer: Albinit in collaboration with the Niguarda Ca’Granda Hospital
4th EDA
March 7-10, 2018 – Hurdal, Norway
Local organizer: NFFA