The 5thEDA was initially planned to be held in Bordeaux, France, April 1st-4th, 2020. However, due to the COVID-19 pandemic, the conference will eventually be held online November 4th – 7th, 2020.

The meeting of young adults with albinism as well as the meeting of Albinism Europe member association leaders are postponed to a later date, yet to be determined.

The 5thEDA organizers are very much looking forward to seeing you online at the beginning of November, for what promises to be a very rich scientific event in a virtual but warm environment!


Benoit Arveiler
Benoit Arveiler
Llluis Montoliu
Llluis Montoliu
Antoine Gliksohn
Antoine Gliksohn
Béatrice Jouanne
Béatrice Jouanne

Dear colleagues,

Albinism is a rare genetic condition affecting the vision, the skin and in certain forms other tissues and organs such as blood cells, the lung, the gastrointestinal tract and the central nervous system. Caretaking of the patients therefore requires an interdisciplinary approach. The same holds true for research and clinical handling of albinism, where geneticists, cell biologists, molecular biologists, biochemists, developmental biologists, ophthalmologists, dermatologists, hematologists and neurologists must explore the patients with albinism or investigate on this genetic condition in a cooperative manner.

The European Days of Albinism (EDA) are unique occasions for scientists and medical practitioners in charge of patients with albinism and involved in research on this condition to meet and share advances in the field. EDAs also hold a meeting of the European Patients Associations and a meeting of Young People with Albinism (YPA). Gathering scientists and patients’ representatives in the same place during three days stimulates information sharing and discussions in the community.

The Fifth EDA (5EDA) will take place in Bordeaux, France, on April 1st-4th, 2020.

Scientific sessions will cover dermatology, ophthalmology, genetics, cell biology and therapy. A specific focus will be on eye development and on Hermansky-Pudlak syndrome.

As in previous editions a plenary half-day session will gather the scientists, patients associations and young people with albinism.

We are looking forward to seeing you in Bordeaux for the 5th European Days of Albinism!

Benoît Arveiler and Lluis Montoliu, for the Scientific Committee of Albinism Europe

Dear Friends,

It is our pleasure, on behalf of Genespoir – the French Albinism Association, to welcome you to France, for the 5th European Days of Albinism. We are very honored to be your hosts from April 1st to 4th 2020 in Bordeaux for an event containing three parallel meetings: 1) a scientific conference with top experts of albinism coming from Europe and all over the world. 2) A working meeting of Albinism Europe, with representatives of 10 different European albinism associations and 3) A gathering of about 40 young European adults with albinism (the 4th YPA). It is certain to be a great opportunity for all participants to learn, get inspired and meet new colleagues and friends.

Bordeaux is the capital city of the Nouvelle-Aquitaine region, as well as the World Wine Capital. Its historical center is a UNESCO world heritage site. The city is located in close distance to the Atlantic Ocean. Springs are generally mild with average temperatures around 17°C during the day and 7°C at night.

The 5th EDA will take place at the Mer & Golf City Hotel in Bordeaux-Bruges. Following the example of the previous conference, we have chosen a venue that can host both the scientific conference sessions and the meeting of associations as well as offer accommodation to all participants. The hotel is located on the shore of a pond in a quiet environment outside the city center. A nearby tram line offers easy access to the historic center and to the main train station. The hotel is located about 30 minutes away from Bordeaux Mérignac international airport.

Our international scientific committee has prepared an extremely rich program with sessions covering all the aspects related to albinism. But we know that leisure and social times are also very important during a conference. When coming to 5EDA, every participant will be free to enjoy some moments of leisure by discovering Bordeaux’s world-renowned heritage of wine-growing, among the many other touristic sites. To relax after the long days of conference, we will suggest you visit the 4.000m2 wellness center located just next to the venue and open every day until 9pm. It offers saunas, hammams, hot tubs and swimming pools… Just make sure not to forget your towel and swim wear!

By gathering researchers, medical practitioners, representatives of associations and young adults with albinism at the same place for several days, we aim to strengthen an international community and generate a unique and inspiring environment, leading to major steps forward in the world of albinism.

Please don’t hesitate to join us in France for the 5th European Days of Albinism!

On behalf of Genespoir,
Béatrice Jouanne (President of Genespoir)
Antoine Gliksohn (Genespoir International Affairs Officer)

November 2019